Worldwide organisations

[southa]

Hi,

I've been looking round on the web for some charities to donate to before the tax year is up, and I found this site. I've read enough to get the idea that I have no comprehension of what cluster headache sufferers must go through.

I can imagine one thing that might be worse and that's having them in, say, a developing country, without medication or knowing what they are. Do you know of any charities or organisations that try to address this?

Many thanks
Andy Southgate

[Mike]

Andy, we know of quite a few organisations in Europe, Australia and America supporting Cluster Headache sufferers, none of them except OUCH UK are registered charities. I personally know of no organisations in the developing countries who support Cluster Headache. Cluster Headache is still considered a rare illness, largely unheard of despite the fact that it affects as many people as Multiple Sclerosis.

[Val]

What about contacting the International Headache Society, might they not know of overseas headache charities in developing countries? Part of their remit is

The purpose of IHS is to advance headache science, education, and management, and promote headache awareness worldwide

http://www.i-h-s.org/

I can't begin to imagine the horror of suffering this condition in a country where there is no health provision or understanding of severe headachd disorders.

Val.

[CarolynM]

I saw a doctor in Sri Lanka with my slipped disc. She wanted to know all about my treatments and took the patient leaflets from everyone of my drugs. she said how lucky I was in the west to be able to get Imigran injections- truthfully I just took this for granted. I also told her about oxygen and that is something she hadnt heard of and can use as she sees a lot of cluster headaches. Wow I felt one lucky girl