Downloads
The Kip Scale
Devised by the late Bob Kipple as a guide to pain levels.
Contrary to the belief of some, there is no KIP 11.
KIP SCALE.pdf >>
"Notes for Colleagues"
A personal description of what a CH attack is.
A useful document, especially for those who work alongside you.
Note for colleagues.pdf >>
High Flow Oxygen Therapy
Some general notes on how to get the best from this method of aborting attacks.
High Flow Oxygen Therapy2010.pdf >>
NEW HOOF
A part completed copy of the Home Oxygen Order Form (HOOF) with the important bits for CH'ers pre filled in. This is a new form to be used with immediate effect - the previous version will not be accepted from 1st November 2009. We have, at long last, managed to get cluster headache listed as a category (number 20) rather than "other". Progress, indeed!
Note: Please read the third page.
This part completed form is ONLY to be used for CH sufferers and other related Trigeminal Autonomic Cephalalgia sufferers.
HOOF-new-part-complete-amended.pdf >>
Causes & Current Approaches
From "Prescriber" and article by Dr Manjit Matharu.
Precriber.pdf >>
Transcript
Professor Peter Goadsby's presentation at the 2007 conference
PGConTrans.pdf >>
Membership Standing Order Mandate
To ensure continuous membership of OUCH(UK) download this form and send it back to us.
StandingOrderMandate.pdf >>
Andy's story
How one family cope with Chronic Cluster Headache.
Mac's.pdf >>
Glossary
Glossary of Medical Terminology used in Cluster Headache.
Glossary.pdf >>
Headache UK manifesto
As most are aware, we are founder members of HUK (Headache UK) along with BASH, Migraine Action, Migraine Trust and MIPCA.
HUK is launching this manifesto. The manifesto has been sent to MPs with an interest in headache and HUK is asking all members to encourage their individual organisation members to write to their MPs in support of the manifesto.Please do lobby your MP.
Headache UK Manifesto final.pdf >>
All Party Parliamentary Headache Group
Here is a review of the All Party Parliamentary Headache Group (APPHG) activities carried out during 2008-09.
A Report on the Activities of the APPHDG 2008-09.pdf >>
Cluster Headache Survey
This is an abstract from the U.S. cluster headache survey co-authored by Dr. Todd Rozen of Geisinger Medical Center and Royce Fishman of Linde Healthcare, Linde Gas. It was presented at the 2009 International Headache Congress September 2009. This is one of two publications of the large on-line survey in which 1,134 cluster headache sufferers participated in and which involved efforts and support by OUCH, Clusterheadaches.com, the American Headache Society and others. These are excellent educational tools for you and your GP.
Cluster Headache Survey.pdf >>
Oxygen and Cluster headache survey
This is an abstract from the U.S. cluster headache survey co-authored by Dr. Todd Rozen of Geisinger Medical Center and Royce Fishman of Linde Healthcare, Linde Gas. It was presented at the 2009 International Headache Congress September 2009. This is one of two publications of the large on-line survey in which 1,134 cluster headache sufferers participated in and which involved efforts and support by OUCH, Clusterheadaches.com, the American Headache Society and others. These are excellent educational tools for you and your GP.
Oxygen and Cluster Headache.pdf >>
DLA Advice notes
These notes are intended only as a guide and are no guarantee that the applicant will be granted DLA or any other benefit.
DLA advice notes.pdf >>
O2 information for Patients in England and Wales
IMPRESS
Rationalising oxygen use to improve patient safety and to reduce waste - new guidlines.
Information for Patients in England and Wales.pdf >>
O2 Information for GPs and Neurologists
IMPRESS
Rationalising oxygen use to improve patient safety and to reduce waste - new guidlines.
Information for GPs and Neurologists.pdf >>
IMPRESS
The consultation for the Strategy for Services for Chronic Obstructive Pulmonary Disease (COPD) in England contains 24 recommendations for improvements in the delivery of care for people with COPD and asthma.
IMPRESS has produced a guide that “recommends that one area of potential waste and ineffective care that is crying out for change is in the prescribing and ordering of oxygen.”
Step 6.pdf >>
Cluster Headache Dissertation
The Invisible Invader: A Qualitative Study to Ascertain how Living with Cluster Headaches can Impact on a Person’s Wellbeing and Day-to-Day Functioning.
This research was conducted in 2010/11 by cluster headache sufferer Apple O’Neill as part of her BSc (Hons) in Counselling and Complementary Medicine. Many thanks to her for letting us share this unique, valuable and well-written piece of research.
CH-DISSERTATION.pdf >>
